Disability Rights Pennsylvania is ready to set legal and advocacy priorities for fiscal year (FY) 2018. Congress provides Disability Rights Pennsylvania with seven (7) different federal grant programs to protect and advocate for individuals with all disabilities. Congress permits the organization to set priorities to narrow the scope of its work because these resources are not enough to serve everyone in Pennsylvania with a disability.
The organization solicits public input to help guide its priorities. Comments from the public are forwarded to the organization's Board of Directors and Mental Health Advisory Council for review and consideration. The Board of Directors for Disability Rights Pennsylvania provides final review and approval of the priorities.
The deadline for public input is Monday, August 21, 2017.
Click here to submit your comments online.
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The Department of Human Services (Department) is soliciting public input on the use of electronic visit verification (EVV) systems for Medicaid-funded personal care and home health care services in Pennsylvania.
The 21st Century Cures Act, Public Law 114-255, was signed into law on December 13, 2016. Section 12006 of the Act (codified at 42 U.S.C. § 1396b(l)(1)) requires all states to implement the use of electronic visit verification for Medicaid-funded personal care and home health care services.
EVV is a system that electronically verifies that personal care and home health care services were delivered. According to the Act, EVV for personal care services must be implemented by January 1, 2019, and for home health care services by January 1, 2023.
The EVV system may be maintained and operated by the state, a state contractor or a provider agency. The Act requires that the system verify the type of service provided, individual receiving the service, individual providing the service, date of the service, location of the service delivery and time the service begins and ends. Services may be verified by the recipient’s home landline telephone, smart phone, biometric recognition systems or fixed visit verification device--an electronic random numbers device in the beneficiary’s home.
New Study Suggests Support for Families and Children in Poverty Cannot Begin Too Early
PHILADELPHIA (PRNewswire-USNewswire) -- By age one, infants in low-socioeconomic families have already been exposed to greater environmental disadvantages that contribute to poorer cognitive and language development, according to a new study from PolicyLab and the Division of Neonatology at Children's Hospital of Philadelphia (CHOP). Published in the Journal of Developmental & Behavioral Pediatrics, this study shows that poverty can impact a child's development as early as age one.
As part of a larger study designed to determine how poverty influences brain development, children were assessed at age one using validated developmental assessments that measure infant cognitive and language functioning. The researchers found that infants in low-income families (defined as a family of four with an annual income of $23,500 or less) had significantly poorer cognitive and language performance than infants in higher-income families. For example, infants in low-income families demonstrated lower levels of problem-solving behaviors and understanding of caregiver communication than higher-income participants at age 12 months.
Additionally, this study is among the first to evaluate multiple aspects of the maternal, home and neighborhood environments of infants growing up poor. The results demonstrate a portrait of disadvantage. Low-income families were more likely to experience higher levels of stress and food insecurity, have fewer age-appropriate toys and books for their children, and provide less child-centered households. Low-income mothers scored lower on measures of verbal and visual spatial skills and were more likely to experience concentrated neighborhood disadvantage.
"The effects of poverty on older children have been well-documented by researchers over the past few decades, but this is the first study to illustrate the multiple disadvantages infants face before they turn one-year-old," said Hallam Hurt, MD, a neonatologist and professor of pediatrics at CHOP, faculty member at PolicyLab, and lead author on the study. "Today, many vulnerable children don't receive the support of programs like Head Start until age three. Our research suggests a window of opportunity for initiation of interventions at much earlier ages for both infants and their families."
"Early divergence of cognitive and language performance between low- and higher-income children increases over time," said Laura Betancourt, PhD, of the Division of Neonatology at CHOP, who conducted the developmental assessments and is an author on the study. Given this anticipated decline, Drs. Hurt and Betancourt emphasized the urgency for provision of resources for infants and mothers facing environmental disadvantage.
Although the study sample was small – 52 families from Philadelphia – it was made up of a homogeneous and healthy group of African American mothers and female babies, allowing the researchers greater ability to isolate the effects of poverty. Future research is needed to replicate this study in larger, more diverse cohorts in different locales.
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People who provide care for adults with intellectual or developmental disabilities perform many daily tasks for and with the person, including managing medications. Researchers at the University Of Michigan College of Pharmacy are conducting a survey research project to determine the issues that caregivers may encounter when managing medications for people with developmental or intellectual disabilities. This is a one-time event. You are eligible for this study if you are a caregiver of an adult with intellectual or developmental disability, you are aged 18 years or older, and the person you care for takes one or more medications.
Participation is completely voluntary. All information obtained from the surveys will be kept in strict confidence. The survey takes from 10 to 20 minutes to complete. If you complete the survey, a study subject identification number will be assigned to your set of responses, but no link will be made to you specifically.
If you have any questions or concerns about the survey or this project, please contact Steve Erickson, Pharm.D., Associate Professor, University of Michigan College of Pharmacy by phone at (734) 763 4989 or by email at firstname.lastname@example.org.
The Institute on Disabilities is working with the Sibling Leadership Network on a project to study the support needs of siblings of individuals with disabilities.
The project has created the National Survey about Siblings of Individuals with Disabilities, their Support Needs, and their Families and invites all siblings of people with disabilities, and others, to share their perspectives.
The survey is for the following individuals to complete:
· Siblings of people with disabilities
· People with disabilities
· Parents of people with disabilities
· Professionals working with people with disabilities and their families
This is an online survey and will take less than 30 minutes to complete. The link to the survey is: http://bit.ly/SiblingSurvey.
If you have any questions or concerns or would like the survey in an alternate format, please contact Meghan Burke at 217-300 -1226 or email@example.com.
Source: The Institute on Disabilities at Temple University